Examining Perceived Stigma, Disclosure, Self-Compassion, and Health-Related Quality of Life in College Students with Cystic Fibrosis
Date of Award
Maria T. Riva
Chronic illness, Cystic fibrosis, Disease disclosure, Health-related quality of life, Perceived stigma, Self-compassion
Cystic Fibrosis (CF) is a life-limiting genetic disorder that affects the lungs, pancreas, and other organs. Recent advances in CF-related healthcare have improved the life expectancy of individuals with CF from childhood to approximately 50 years old (CFF, 2020). Therefore, more individuals with CF are attending college and facing challenges within this new stage of life. This study examined perceived stigma, disease disclosure, self-compassion, and health-related quality of life (HRQoL) in a sample of current and former college students with CF to understand their psychosocial experience of managing their illness while in college. Results indicated that perceived stigma and HRQoL were negatively related and perceived stigma and self-compassion predicted HRQoL. Disease disclosure was also examined to uncover the frequency and comfort of disclosure within this sample, which found that the participants most frequently disclosed to close friends (n=33/34), followed by casual friends/acquaintances (n=27/34), professors (n=24/34), then their romantic partner/spouse (n=17/19). Participants reported they felt most comfortable disclosing their disease to their romantic partner/spouse and close friends. These results can help inform CF-related care and support by shedding light on the significance of perceived stigma and self-compassion in predicting HRQoL, and disease disclosure as an important step in the process of adapting to life as a college student with CF.
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Hangge, Anna R., "Examining Perceived Stigma, Disclosure, Self-Compassion, and Health-Related Quality of Life in College Students with Cystic Fibrosis" (2022). Electronic Theses and Dissertations. 2125.
Received from ProQuest
Anna R. Hangge
Clinical psychology, Health sciences, Higher education
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